Thursday, April 25, 2013

Have I become jaded?...

I am sitting here in the surgical wait area with my daughter and as I am watching her play at the table in front of me, I see a couple walk past me, wiping away tears. I know that they've just let their child go into the well trained hands of one of Phoenix Children's wonderful nurses. I know they've just hugged their child and are now wrought with fear over her surgery. I know this, I saw it all as I sat here, ever observant. I look around me and notice they are the majority and I, calm and collected, am the minority. When did this happen? When did I join the ranks of the seasoned parent? Or have I simply become jaded to this entire thing?

You can always tell the seasoned parents and the newbies, in a surgical waiting room. The newbies are fearful, teary eyed and smother their children as though its their last hug or kiss. The seasoned parents are quite different. They smile and laugh, the fear in them never goes any further than their eyes and they shield their children from the brunt of it. They give hugs and kisses when their child walks off with the Nurse and directly after their "I love you" is "see you in a little while!" They save their emotions for the privacy of a bathroom or bedroom. No one sees them cry and no one understands the worry that seeps through their veins. They are seasoned and well versed in this game of composure and strength. But they aren't exempt from the worry and fear.

Somewhere, in the last 8 years, I became "seasoned" and this became our life, not our tragedy. It isn't just me though. My daughter smiles and laughs with the nurses. She tells them, when we leave, see you next time and she knows there will be a next time. She makes requests for movies while we wait, specific surgical gowns/clothes in her favorite colors when she's told to change for surgery. When they put her arm bands on, she has them put them in the same order each time, linking them like a red, white and blue bracelet. My other children prepare for a day spent at the hospital and they adapt to the schedule change easily. Our whole family has become normalized to this way of life and yes, we've all become seasoned I guess.

I used to be that Mom who cried as my daughter walked away. Honestly, I think most of my tears were a result of Grace's fear and her own tears. She would cry as the nurse came to take her, I would cry about the entire situation. Now, we don't cry anymore. That's not to say I don't feel the fear. I do. I've just learned that Grace can smell it, like a dog. She picks up on it and it will actually change the way she reacts to the day. So I bucked up and dealt with my feelings without letting her see or sense them. I don't know when, or why she stopped being so fearful but I know its still there in her as well. I see the way she reacts to me telling her or the other kids that Grace has another appointment. I see the fear in her eyes when my husband and I talk about the surgeons expectations of her. I know its there, and yet, she too has learned to quiet the fears when it comes time to.

I wondered that day if I had become jaded in the process. What does that say about a person, about a family, when these hospital trips and surgeries are routine? What does that say about a parent who sees her child's surgeries as normal? Was I allowing Grace to constantly be "worked on" simply because it had become a regular occurrence? A necessary evil? I was genuinely worried about that as we sat there waiting for the surgeon to come talk to us post-surgery.

Unfortunately, I was caught mid-bite by her surgeon. Imagine me sitting outside the waiting room (because no food is allowed in there) scarfing on a mcgreasy, or as McDonald's likes to call them, egg mcmuffin. I hadn't eaten that morning so I was hurriedly trying to fill my belly and her surgeon comes out. He shows me pictures of her airway (now imagine that greasy food sort of making a return - those pictures aren't pretty!) and says that he may be able to decannulate this fall if all goes well. I felt like all the oxygen had been siphoned out of the room. I couldn't breathe. Grace has had a Trach for as long as I can remember, since she was 2 months old. To not  have it... well that's a terrifying and exciting thing. Its what we've been working towards, its the reason she's gone through so many surgeries.

In that instant though, I realized I was not jaded in the slightest. The thought of Grace going through this was nerve wracking and I was horrified. I wanted to tell him, "oh nevermind" and just never come back. I wanted to run screaming out of there, actually. But I pulled myself together, like I had learned how, and I thanked him. I'm not jaded, I realize this now. These things still affect me like you cannot believe. But I have learned how to pretend that I'm strong. I've learned to wear my game face to these places because as fearful as I am about this stuff, I have to sell Grace on it being perfectly fine. I have to tell my 8 year old that there isn't anything to be scared of. I have to trust that everything will be okay, even if inside, I am a basket case. I may be seasoned but I am still her Mother and I am still incredibly fearful sometimes. Like now... I am very, very scared now.

Her next surgery is in May and I'll be honest, I may act like one of those newbie parents all over again. I may leave crying and give someone pause, a reason to wonder whether they've become old hats at this as well. I may be that emotional person, or I may keep my composure for Grace's sake. All I know is, I will stop wasting time wondering if I am jaded by this because I know that's a silly thought. I'm no more jaded than those newbies. I've just learned to look more calm than I really am. I'm seasoned, but I'm not exempt from the fear...

Friday, February 1, 2013

Are You Nervous About This Weekend? Because I Am!

Tomorrow I begin the workshop that will be step #1 on my road to becoming a Doula. I am incredibly excited and equally nervous! I know that this is a good and wonderful thing. I know that I will do well and that the effort I put in to this will be reflected in the people that I am able to help and support. However, a small and niggling (and irritating) part of me is playing the "what if" game and throwing me a case of nerves. What if I am a complete and utter failure?! What if rather than helping a family, I hinder them instead?! This bundle of nerves is for the birds. I do not like it!

I will be gone almost the entire day on Saturday and Sunday. Both days the workshop is from 9am-6pm (an hour drive both ways as well). For this big 'ole preggo, it's going to be very, very long days! I have been thanking God Almighty that I have not gone into labor although, after this workshop is completed - well Baby Girl can feel free to come at any time. I'm not a glutton for punishment, this child is more than welcome to make her appearance and if so, do it with minimal discomfort (yeah... right!) I know, wishful thinking that I could possibly have a nearly pain free labor this time around. I had horrible, insane contractions the other night and judging from them... well this is going to be a doozy! I'm telling you, I may believe in all-natural births but that's not to say that I enjoy, appreciate or welcome the pain. I'd rather have an all-natural birth that is pain free... Anyone know how to accomplish that? Really... I'm not kidding. I'd appreciate any advice on the subject and A.S.A.P, we are on a time crunch here people!

Anyway, so we've covered that I'm nervous and would prefer to have this enormous baby out fairly soon, right? So that about wraps up this very small post today. I will update you Sunday (or Monday) and let you know how my workshop went. I'm positive that its going to be informative and amazing, lets just hope I survive sitting through it! ;-)